Going to talk to a private specialist on gastro-intestinal diseases tomorrow.

I got a mail from a Co-ordinator/Assistant endicronologist at a private clinic in Lund this friday, I could not get back to him until I finished work. I’ll talk to him tomorrow (monday) and I’ll try to work something out really quickly. I have to get an examination. It will cost more than going to my normal doctor but it will be worth it. The solution will give me my real health back and then I’ll start the process of…

Sparks will fly when I get my full health and my lost intellect back. I am about 70% (both physicly and mentally) functioning now with this reduced capacity compared to how I was when I was recovering back in December/Jan.

I will be healthy and then I’ll…

Money is nothing – Health is everything. 

Hernia – Something that does not go away by itself.

Hernia is a kind of muscular weakness that has been created because of diminished resistance power in that area. If a doctor cannot really locate exactly where the hernia is loacted you will have to have an examination at an x-ray facility. Hernia does not go away by itself and surgery most often has to be performed to stabilize the area.

I would need to have an x-ray done on my stomache, diaphragma and lungs to get to the bottom of this. My stomache is never firm as it should be.

I believe that the oxygen I got at the surgery may have helped to stabilize the resistance in the stomache, but it was not enough to heal the hernia. The search goes on.

I will be healthy again.

Training the neck and the muscles in the stomache.

Since I know that I can get well again, the only way there is to figure out what happened to me in December.

These are the things that were given to me…

- Oxygen through nasal intubation 5 liter per minute

- Local Anesthesia injection with Xylocain-Adrenalin 2% 1,8 ml x 8.
- Bensyl-PC 36
- Betapred 8mg IV (cortisone, no effect) (retried)
- Dridol 2,5 mg 0,2 ml IV.

- Propofol
- Ultiva
- Robinol
- Celo
- Ketogan
- Xylocain -adr

- Glukos

After the operation I was given
- Citodon
- Kåvepenin (no effect) (retried)

Something from here gave me the effect that was needed to recover. My doctor needs to find out what it was. I need to get healthy.

I’ve been training my neck daily since last week and it has given some results in improved motion and flexability, but my stomache muscles still stay weak. I had an answer from the X-ray department at my local hospital and they said that there is a certain x-ray you can do for the diaphragma and it’s very easy to do. I need to get that done. Maybe x-ray the lungs at the same time. Damn it, I’m closing in on 9 years with this shit.

Also I’ve read of two football players which have had something called stomache weakness. They both had to have surgery to correct it. Maybe that is something to look into.

Enjoy the sun!
/Gustav

Cortisone trial over. No improvements.

So it was not the cortisone. I don’t have an inflammation in the body. What I do have is a non functioning blood circulation to the diaphragma. One or several nerves is twitched or there are an ischemia thingy going on with some of the blood vessels. I also started D-Vitamin today 2000IE. My doctor needs to focus on finding the pinched nerve or the ischemia in a blood vessel.

Whichever it is, it is in the neck or mouth, most probably the neck. Blood needs to flow to this nerve, or more blood needs to flow through that vessel by opening it up.

I breath in but the diaphragma cannot get the sufficently needed blood supply to tighten itself hard enough, and from that comes all my other symptoms. It is kind of a chain reaction which effects my whole body.

If you look at all the nerves supporting the diaphragma and you check them one by one, then you most probably will find where the pinched or injured nerve is and then I can go on living a normal life again. My doctors must help me. I want to get well again.

/Gus

The lyme-induced ischemia theory – hotter than ever…

So it was probably not the cortisone (one dose left tomorrow of 3mg), it was not the antibiotics (Kåvepenin) and it was not the removal of the metal titanium.

BUT it was something else in there that made a difference to my condition. The faultyness in my condition lies with the diaphragma. It is that part of my body that does  not get the appropriate blood circulation. During the healing of the scars in the mouth from the titanium removal this circulation found itself back to the diaphragma. Why, and why did it only happen while the wound was healing? How come it went back to the old default status again when the wound had healed? These questions are not for me to answer but for my doctors.

Since I was bitten by the tick I’ve had a bad cracking neck. It cracks all the time when I turn it on the right side. It’s good and bad but it is never completely good, this dissapeared during the weeks when I felt good, when the scars where healing. I need to ponder the possibility that the tickbite damaged the vascular pathway to my diaphragma and that it progresses and that is why I become worse.

Somewhere in my neck or mouth is the solution to my problem. I can get completely well again like I was in December/January. The riddle just needs to get solved.

A friend of mine called Nemesis brought a theory about VEGF to my table “Surgery damages the tissue and when the tissue heals there may be a surplus of, for example VEGF which nerves can take profit from”.

Was this what happened while the wound healed?  Was the original and broken pathway to my diaphragma unavailable while the scars was healing, may it be that VEGF created an alternate vascular route to the diaphragma and that is why I recovered? Then when the original (and broken) pathway was healed the body went back to that one because nr.1 is always number one.

It’s all very confusing. I know I may have a problematic progressive ischemia problem somewhere in neck/mouth area. This needs to be taken care of as quickly as possible before the connection is totally cut off because then, my problems will be life threatening.

I’ve contacted a bunch of experts on VEGF and I am going to look for Drs that are experts on Neovascular problems. I will find the answer, because I’ve seen improvement come from the body that I have and I’m stubborn. I know I can make this, I just need the right people to believe me and help me find the solution.

/Gus

9 mg into the cortisone treatment and no particular change…

It SEEMS like I’ve hit yet another dead end, the full schedule is to continue until monday though and I will do that. On monday I will have reached a total of 15mg of cortisone which is 7mg more than I had at the hospital and that would most probably have given me the effect needed.

I was hoping that it was the cortisol level being bad but according to the tests I’ve taken they are good. Only bad thing is D-vitamin which is suppose to be 75 but is 31 if I remember correctly. I bought a pack of them to get my reccomended level from the doctor.

In the next post I will continue to narrow down the problem. The solution will come. I will be healhty again!

I just got some cortisone

I’ve gotten my hands on some cortisone. I’ll take 3 mg for 5 days to see if I revert back towards the old me again. Hopefully I will. If this works then it will be a clue to finding out what is causing the diaphragma to behave like it does. Because you would literally be able to spot when the difference occurs.